Alzheimer's Foundation of America
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Publications

AFA-Sponsored Surveys

Alzheimer’s Caregivers: Behavioral vs. Cognitive Challenges

Caregivers of family or friends with Alzheimer’s disease or a related dementia reflect on how behavioral symptoms—irritability, anxiety, aggression, etc.—compare to cognitive symptoms—memory loss, confusion, etc.—in their impact on diagnosis, disease management, caregivers’ well-being and other issues.

Click here to download the survey results.  

Click here to read press release. Click here to read fact sheet. 

 

Investigating Caregivers' Attitudes and Needs (ICAN 3): Life of a Sandwich Generation Caregiver

Most “sandwich caregivers” – the parents or guardians of children under 21 who also care for an aging parent, other relative or friend with Alzheimer’s disease – say their children are assisting with caregiving responsibilities that range from attending doctors’ appointments to feeding and dressing their loved ones.

Click here to download the survey results.

 

Investigating Caregivers' Attitudes and Needs (ICAN2)

African-American and Hispanic caregivers of people with Alzheimer’s disease are significantly more likely than caregivers of other races to consider the disease a normal part of the aging process and dismiss its symptoms as part of getting older. This gap in understanding sheds light on the reasons for delay in diagnosis and treatment, which is an unnecessary setback for caregivers and individuals with the disease alike.

Click here to download the survey results.

 

Investigating Caregivers' Attitudes and Needs (ICAN)

Concern about stigma and denial of symptoms can delay a diagnosis of Alzheimer's disease by more than two years (28.7 months) on average after symptoms appear.

Click here to download the survey results.

 

Memory Screenings: Who Attends and Why

A MetLife Mature Market Institute study of people who attended voluntary memory screening during National Memory Screening Day in 2006 shows 73 percent have memory concerns, though many may be reluctant to discuss them with others, even their physician.

Click here to download the survey results.